MARFAN WORLD MEMBER ORGANIZATIONS
Argentina
Dr. Monica M. Segura, President
Email: [email protected]
Australia
Marfan Association, Queensland
8 Rosemallow Avenue
Upper Coomera
Qld 4209, Australia
Email: [email protected]
Website: www.marfanqld.org.au
Facebook: www.facebook.com/MarfanAssocQLD
Marfan Foundation Australia
Contact: Nexia Edwards Marshall
GPO Box 2163
Adelaide SA 5001
https://marfan.org.au/
Austria
Marfan Initiative Österreich
Contact: Margit Aschenbrenner
Ortliebgasse 23/8
1170 Wien, Austria
Email: [email protected]
Belgium
Association Belge du Syndrome de Marfan
Rue Residence Air Pur 27A
4623 Magnee, Belgium
Telephone: +32 4 355 13 59 (Yvonne Jousten)
Email: [email protected]
www.bindweefsel.be
Brazil
Brazilian Marfan Association (Marfan Brasil)
Rua Napoleão de Barros, 715 - 10º andar, Vila Clementino
São Paulo - SP - CEP: 04024-002
Telephone: (55 - 11) 3887.9168
www.marfan.com.br
Canada
Genetic Aortic Disorders Association
Chrisanne Campos, Ph.D., Executive Director
Central Plaza Postal Outlet
128 Queen Street S.
P.O. Box 42257
Mississauga Ontario L5M 4Z0, Canada
Toll free Telephone: 1-866-722-1722
Telephone: 905-826-3223
Email: [email protected]
www.gadacanada.ca
China
Hong Kong Marfan Syndrome Association
Chairman: Mr. Liu Zhiqiang
Contact: Olga Chew or Steve Lau
Email: [email protected]
Email: [email protected]
Email: [email protected]
www.marfan.org.hk
Kangxin Marfan Syndrome Care Center
Mr. Jiguo Chang
Tel：+86-010-6445 6326
Email: [email protected]
Costa Rica
Contact: Michelle Gómez
Email: [email protected]
Cuba
Cuban Association of Marfan Syndrome
Contact: Carolina Douglas
Calle 34 No. 310, apto2
entre 3ra y 5ta, Miramar
Ciudad de La Habana 11300, Cuba
Fax: ++337 330145
Email: [email protected]
Denmark
Danish Marfan Association
Contact: Sven Back
Randlevvej 16
8300 Odder, Denmark
Telephone: ++45 4826 3652
Fax: ++45 4826 3752
Email: [email protected]
www.marfan.dk
Finland
Finnish Marfan Association
Contact: Eeva Luukkonen, Chair of the Board Tuija Ekegren, Secretary of the Board
Helsinki, Finland
Email: [email protected]
www.marfan.fi
France
Association Marfans
Contact: Stéphanie Delaunay
121 rue de la Convention
75015 France
Telephone: ++33 139121449
Email: [email protected]
www.assomarfans.fr
Germany
Marfan Hilfe (Deutschland) e.V.
Contact: Marina Vogler
Post Box 0145
D-23691 Eutin, Germany
Telephone: ++ 0700 - 22 33 4000
Fax: ++49 4521 8305034
Email: [email protected]
Email: [email protected]
www.marfan.de
Greece
Greek Association of the Marfan Syndrome
Contact: Xanthi Zafiris
Telephone/Fax: 01130 210 6854051
Athens
Email: [email protected]
Guatemala
Contact: Evelyn Oliva Barrios
Guatemala City, Guatemala
Email: [email protected]
Facebook: https://www.facebook.com/pages/Sindrome-Marfan-Guatemala/353133678065572
India
Chirarnjib Nath
South Hazarapar
Tezpur, Assam
India 784001
Email: [email protected]
Ireland
Marfan Syndrome Support Group
Contact: Mary O'Driscoll
Carmichael House
North Bruswick Street
Dublin 7, Ireland
Telephone: 01 6239563
Email: [email protected]
www.marfan.ie
ITaly
Associazione Vittorio
Contact: Silvia Salice
Telephone/Fax: ++39 11898 0995
Email: [email protected]
www.marfan.info
J Peter Associazione Onlus – Milan
Contact: Maria Carla Favini
Email: [email protected]
Email: [email protected]
Facebook: Associazione J Peter
Associazione Marfan - Bologna Email
Contacts: Gabriella Maria Sasdelli, President (Head Office) Manuela Gandolfi, VP (Reggio Emilia Section) Isacco Farmentini, Secretary (Reggio Emilia Section) Telephone: (+39) 051 363572 (Head Office S. Agata Bolognese) (+39) 334 1218039 (Head Office S. Agata Bolognese) (+39) 052 2348524 (Reggio Emilia Section) Email: [email protected]
www.assomarfan.it Facebook: https://www.facebook.com/Assomarfan/
ITALY CLINICS
Pavia Centro per le Malattie Genetiche Cardiovascolari
Director: Dr. Eloisa Arbustini
Contact: Micaela: 0382 501486
Email: [email protected]
ITALY CLINICS CONT.
Bologna Centro Marfan c/o Policlinico "S.Orsola - Malpighi"
Director: Prof. Marco Bonvicini
Coordinator: Dr. Luigi Lovato , Dr.ssa Mariucci
Telephone e Fax: 051 6363005
Email: [email protected]
Firenze Ospedale Careggi
Director: Dr. Guglielmina Pepe
Telephone: 055 7947514
Roma Centro Marfanc/o Policlinico di Tor Vergata
Director: Prof. Giovanni Ruvolo
Telephone: 06 274599 - 3383833791
Japan
Marfan Network Japan (MNJ)
Contact: Yoko Shimozaki, President
Fukuike 1-17-1, Tenpaku-ku
Nagoya-city, Aichi-ken,
Japan 468-0049
Email: [email protected]
www.marfan.jp
Japan Marfan Association (JAMAA)
Contact: Naoki Kotake
c/o Mr. Ogara
38 Kyotakenooka, Kuwana-shi, Mie, 511-0810
Telephone: ++050-5532-6503
FAX: ++053-454-6764
Email: [email protected]
www.marfan.jp
Mexico
Sindrome de Marfan de Mexico A.C.
Contact: Olga Amador y Pedro García
Insurgentes Sur 319 Piso 3
Col. Hipódromo Condesa
CDMX, México. C.P. 06170
Email: [email protected]
www.marfan.org.mx www.marfandemexico.org
Netherlands
Contactgroep Marfan Nederland
Postbus 1025
3860 BA Nijkerk, The Netherlands
Visiting address:
Stationsweg 6-B 7
3862 CG Nijkerk
Telephone +31 (0)33 247 10 48
Email: [email protected]
Norway
Marfan Association
c/o Norges Blindeforbund Hordaland
Rasmus Meyers Allè 5
5015 BERGEN, Norway
Tel. 47 - 46 66 00 06
Email: [email protected] Email: [email protected]
Facebook: www.facebook.com/marfanforeningen
Peru
La Asociación Peruana del Síndrome de Marfan (APSIM)
Contact: Manuel Vizcarra Barton
Calle Arica 180-Miraflores
Lima. Perú
Telefono : (511) 4471717 Annex (1000)
www.marfanperu.org
Poland
Polish Marfan Association
Contact: Jan Kawalec, President
Swietojanska 49/17
PI-81-391 Gdynia, Poland
Telephone: ++48 601-28-62-45
Telephone: (+48-58) 620-97-23
Fax: (+48 58) 62- 44-25
Email: [email protected]
www.marfan.pl
Portugal
Marfan Portugal
Telf: + 351 225 431 080 / +351 210 970 766
Fax: +351 225 431 089
Email: [email protected]
www.marfanportugal.wordpress.com/
Slovakia
Slovak Marfan Foundation
Contact: Lukovicova Betty
Vajnorska 54,
831 04 Bratislava, Slovakia
Telephone: 00421 2 903 74 74 24, mobile phone : 00421 903 74 74 24
Email: [email protected]
Email: [email protected]
www.marfan.szm.sk
South Africa
Contact: Richard Le Roux
Email: [email protected]
Spain
SIMA Asociación de Afectados Síndrome de Marfan
Oficinas Centrales
C/ Arzobispo Loaces, 12 Entreplanta
F-03003Alicante, Spain
Teléfono: + 34 965 11 11 02 - +34 619 19 61 65
Email: [email protected]
www.marfan.es
Sweden
Svenska Marfanföreningen
Contact: Karin Olsson
Hagby 132
386 96 Farjestaden, Sweden
Telephone: +46 70 538 5519
Email: [email protected]
Email: [email protected] Email: [email protected]
www.marfanforeningen.se
Switzerland
Marfan Stiftung Schweiz
Contact: Giancarlo Bombardieri
Marktgasse 31
CH-3011 Bern, Switzerland
Telephone: 41 31 312 11 22
Fax: 41 31 312 11 20
Email: [email protected]
www.marfan.ch
United Kingdom
Marfan Trust
Contact: Janet Gomes
Genetics Research Centre
Molecular and Clinical Sciences Research Institute
Guy Scadding Building
Davehouse Street, London SW3 6LY, United Kingdom
Email: [email protected]
www.marfantrust.org
United States
The Marfan Foundation
Contact: Susan Leshen
22 Manhasset Avenue
Port Washington, New York 11050, USA
Telephone: ++ 516-883-8712
++800-862-7326
Fax: ++516-883-8040
Email: [email protected]
www.marfan.org
World Organizations:
Marfan Europe Network
Contact: Lauriane Janssen, Chairwoman
Email: [email protected]
www.marfan.eu
Fondation 101 Genomes
Contact: Romain Alderweireldt
6 avenue de Sumatra, 1180 Bruxelles, Belgique
Telephone: +32(0)476.87.18.63
Email: [email protected]
Email: [email protected]
www.f101g.org
Marfan World
Previously International Federation of Marfan Syndrome Organizations (IFMSO)
Contact: Priscilla Ciccariello, President
c/o The Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050, USA
Email: [email protected]
www.marfanworld.org